You are viewing a single comment's thread from:
RE: Life with epilepsy: accepting the reality - day when everything has changed
Yeah i have epilepsy as well, grand mals take about a week to get over. Did you get any aura warning before the seizure like a feeling of dejavu or nausea/dizziness or heightened sense of smell or sounds?
Oh, I so sorry to hear that :/
almost every time auras and strange feelings are present before seizure occurs, but this time nothing...so it was not enough time for me to lay on the floor... :/
Dang sorry to hear it. I had one like that once and gave myself a black eye. Best thing is to go on a keto diet and avoid all caffeine. Apart from that its seizure medication, never forget to take it. I had a bad medication (oxcarbazepine) that was drying up my joints i had to pressure my doctor to change it since he didn't believe that the medication was giving that side effect. Now i am on levetiracetam and it works really well with no side effects.
Posted using Partiko Android
How long do you have epilepsy? I'm on Lamotrigin now and it was helping but last few months with higher dose I'm having more seizures...
I'm learning to cook keto and is really not so bad...it also help with Crohn's disease...
I've had it for about 17 years after having brain surgery for a benign tumor. Initially they had me on dilantin then moved me to oxcarbazepine because it was "safer" lol then it came with more side effects than dilantin. So far keppra (leviteracetam) is doing its job with no side effects other than loss of appetite. I see lamotrigine has quite a few side effects. Hopefully none if those are affecting you. Just keep to keto and plenty of fish oil and no caffeine or alcohol or sugar for that matter. Every little edge up helps.
Posted using Partiko Android
I'm so sorry to hear that :/ I hope you're ok now ❤ I tried 3 diffrent pills and lamotrigin was helping almost one year...But this year not so much...maybe because it was really stressful year...we will see next week what more can we do...But jeah I'm having this keto diet now and I feel really great...I don't drink alcohol but one cup of coffee a day is important :) I can't function without caffeine 😂 I wish you all the best ❤
Gotta quit the coffee, i had to give it up as well since it caused auras. Vitamin b12 is better energy and it also helps fight against seizures. People low on the various b vitamins tend to get seizures more often. Definitely add that to your supplements.
Thank u for your advice ❤ I will try with vitamin b12 🤗