It's super painful, yeah. And almost all of us who have it have stories about being totally dismissed by doctors who think we're just whining about regular cramps. No no. This is "wishing for the sweet release of death" pain. So if people can get diagnosed that simply, even possibly routinely before symptom onset, maybe they can get some kind of treatment and spare them some of that pain, as well as shut up doctors who gaslight their patients.
Here's hoping!