I am sorry you and your son have been through this. I also know it first hand, going since childhood with untreated Lyme disease. Most either said or thought "it was all in my head". Finally dx'd in 2008 and put on more drugs, which had NO effect.
I've been treating myself with the best food I can raise since then. Gave the wheelchair away about 5 years ago....
I had a decent doctor, but she left practice for her family. Have a new one but the jury is out...
He had the most wonderful primary care physician for many years who retired a few years ago, and it has been medical hell to find a PCP who does more good than harm ever since. It's the specialists that are the worst drug pushers. Except for the vaccines. The primaries push those.
I hope your new doctor is one of the good ones, respects your medical decisions, and that their office staff is capable and courteous. The office staff matters more to me than the doctor these days - they are ones who do the work. The doctors mostly just follow standard medical one-size-fits-all guidelines.