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RE: Battling Invisible Illness

in #life7 years ago

I have seen many doctors and have quite a bit of regular tests and diagnostic procedures, as well as regular checks on all hormone levels, and full CBC and bloodwork, as well as thyroid checks. Low T? That's kind of a far shot, and no disrespect but may i ask your credentials? Because part of the earlier post of folks generally being uneducated on invisible illnesses.... is people constantly making suggestions and insisting their opinions on "what else could be wrong" just because they dont understand the formal diagnosis ive explained. None of my illnesses do not have medically substantial evidence backing them and have symptomatic proof as well. And its frustrating to be given medical advice constantly from what usually stems from a clear lack of understanding.

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I came to help and gave you a hint on what could help you and all you do is being toxic. Bye

Not toxic. Im simply holding firm on my standpoint against a lack of awareness, education, understanding, and compassion towards these illnesses. In fact throughout my posts i actively speak out against such things. Your attempted assistance is appreciated nonetheless, however it insensitive. Anyone suffering from an "invisible" is constantly metaphorically bludgeoned by the opinions of others... daily. Most of the time, myself included, we are fully aware of each diagnosis and of our health status. No offense intended however i wanted to make a clear point that opinions like that are unwarranted. You are not my doctor. And your post was insulting MY doctors' intelligence and competency. Not to mention you have almost zero of my full medical history. And did you do more than briefly glance through my one post? I have started active group dialogues, attended support groups, and work for a human services not for profit organization that is assisting in my spreading awareness of my cause. May i ask if you or anyone you know has any invisibles? Because i doubt youd suggest to someone that needs their appendix removed that they should have their gallbladder checked after doctors diagnosed their appendix. And i have yet to see any sufferer or loved one of such state that such opinions or comments were helpful in any way. In fact quite the opposite. It is added stress, and opinions from anyone other than those of the medical professionals treating us is unnecessary and unwarranted. Whether you meant harm or not, it was insensitive and it is a frustrating daily battle for people with these conditions. So i apologize youre offended... i meant no trollish or toxic vibe. However i assumed youd be humble and adult enough to try looking at a different perspective and maybe with a dose of understanding or compassion. I remain silent for no one and never mean anything other than good intent and good vibes. But you sir, took the level from underaware to ignorant just now. So you shouldn't dish out completely unsubstantiated opinions if you cant handle educated ones in return.

Too long didn't read.

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