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RE: Look Out Rare Disease...The Flying Lifeguards and Kaila's Komfort Are Coming For You!
It's heart-warming to see people gathering together to support the cause, to create awareness of the 2 diseases. Bravo!
It is definitely heart-warming today, but it's sad to reflect on years of misdiagnosis and suffering before these diseases were identified. Even now the treatment for both conditions requires daily shots of expensive medications.