Dying slowly from Mitochondria, but progressing quickly

I was diagnosed 8 years ago, but I don't want this to be about Mitochondria; rather about my dying a very painful and slow death. Bringing you up to date: I can't walk unaided for more then 20m, loss of balance and legs give in. This disease is killing me, in that the mitochondria in my cells, which give me energy are not working any more, also referred to as immune deficiency disease.

I want to share with you my journey to the end, when ever that may be; last 4 days it's felt as if it was around the corner; pain and symptoms vary from person to person (remember if you want to know more about the mitochondria, look it up) this is about me dealing with the symptoms thereof, as and when body willing. I will try and share my experiences with you, hoping somebody may at least in some way benefit from my story.
My pain is getting bad so I can't carry on, sorry so short but also still trying to familiarize myself with Steemit. My cognitive dysfunction is just one of the symptoms.....tomorrow then