Ella Murray, Little Girl Peeling Skin Patients Every "Move" (Epidermolysis Bullosa)

The story of a 9-year-old little girl nicknamed "butterfly girl" is very sad and heartbreaking to our hearts. Ella Murray is from the City of Washington DC, United States. Every time he moves the skin the whole body will peel, from cracks to blisters to the inside of the flesh. And for him to wear a bandage so he can do his daily activities.

Quoting from washingtonpost.com. Ella Murrray was diagnosed as having a rare genetic disease known in the medical name Epidermolysis Bullosa (EB), with about 20 numbers of births compared to 1 million worldwide, but most commonly in the United States. Although the drug has not been found, there is still hope of recovering with age for EB patients. But if you experience chronic conditions like Ella Murray it is very difficult to recover completely.

Starting at the birth of Ella, where when he was a baby the legs were very thin and barely had skin. And the cracks of the skin are increasingly wide if Ella does a lot of activities. His skin easily fell even though he only made slow movements. And even to sleep, Katie and Joe Murray, Ella's parents, had to give a couple of super soft fabrics, so that if Ella accidentally moved while sleeping, her skin didn't blister and bleed.

The most amazing since he was in grade 1 to grade 4 now, Ella Murray has always been a class star, and successfully won the top 3 ranking at her school, James K. Polk Elementary School in Alexandria, Virginia.

He never complained about his body condition, instead Ella always asked us his parents, why we like to cry when looking at him when he wants to sleep. This is very heartbreaking, but we will never give up looking for the treatment of Epidermolysis Bullosa (EB) that Ella suffered. He is truly our extraordinary daughter, said Katie the mother.
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