Spark Therapeutics Announces First-of-their-kind Programs to Improve Patient Access to LUXTURNA™ (voretigene neparvovec-rzyl), a One-time Gene Therapy Treatment

in #gene7 years ago


In August 2017, the FDA approved the first gene medicine in the United States. 'Kymriah' designed for the treatment of a very special type of cancer of the blood and bone. Each treatment cost $ 475,000. A few months later, the FDA approved a gene therapy called 'Luxturna' for a rare retinal disease. This time the price is $ 850,000, which is about 3,230,000 TL, which means a drug that most people can not reach. Gene therapies show the inevitable future of the pharmaceutical industry.

Kymriah is a genetically modified cancer-fighting immune cell, while in Luxturna, It is possible to treat a specific disease with a single dose, thanks to genetic therapies. The pharmaceutical industry is spending millions of dollars and years to solve such tough problems. For this reason, the price of such a technology is so high that although some of us may be normal, I do not think so. The pharmaceutical industry can sort such ruthless prices on drugs, especially in the US. A drug that normally costs up to $ 100 can be sold for $ 1,600 in the US. Nevertheless, if gene therapies become widespread, it is not unreasonable to anticipate that the price will decrease. Drug companies are nevertheless trying to offer breakthrough therapies by developing new payment models for such expensive drugs.
Spark Therapeutics recommends a reimbursement system if treatment is not effective. There are two different categories; a short cycling effect (30-90 days) and a long cycling effect (30 months). Now these treatments can be applied to real life, this drug is giving rise to the potential to completely change the future of the industry. Still, it is hoped that these treatments will be more accessible for insurers and insurance clients. Of course, the whole supply and demand issue, if the drugs sell, will be even more. It is not even at this level to think that a certain sector will reach such high prices.

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Maybe developers needs to put together an accounting for how much that it cost to develop and be reimbursed for that amount with an appropriate markup. Then that cannot be used as an excuse for withholding drugs from people.

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